New to me, but I LOVE thIS :)
Enjoy:
go to
http://www.butyoudontlooksick.com/the_spoon_theory/
She wrote an awesome analogy - love it love it
Friday, November 6, 2009
Acceptance :(
Guess time to accept EDS is real. I've been under the impression the good days will come back and STAY! HA!
I just spent 2 days in hospital and the Dr. discharged me -Thank goodness.
I had my MRG's and wallet card and was able to feel as if the Doctor and nurses listened!!
Lately, my fingers aren't working so well, stiff, clumsy feeling. My legs feel like jello and in bed my left hip pops out.
Did I mention living off Boost? Food of the day!!
I eat, but it doesn't stay -- eewww gross. Yep. I am SO HUNGRY :(
I am tired, and sleep eludes me. I am irritable.
I hurt, and nothing alleviates the pain. *D&^^&&
The "good days" are gone. My perspective is quickly funneling down with them. I am trying to keep up, but I am soooo tired.
Whine? me? Heck YEAH. especially today. I am tired of seeing the walls of my room.
I forgot the hot/cold/not/cold feelings every moment of the day, and I live in SOUTH FLOriDA.
So, tonight, woe is me. Tomorrow, I'll be better.
I leave with this: (and its not even a fair or nice question) but - who do ya'll prefer or have seen? Dr. Franocmano (sp?) or Dr. - see, I forgot to mention MEMORY LOSS!!!! LOLOL
Night, world. Chins up.
Joints- well, ya' got me there :)
~~~ ALI
I just spent 2 days in hospital and the Dr. discharged me -Thank goodness.
I had my MRG's and wallet card and was able to feel as if the Doctor and nurses listened!!
Lately, my fingers aren't working so well, stiff, clumsy feeling. My legs feel like jello and in bed my left hip pops out.
Did I mention living off Boost? Food of the day!!
I eat, but it doesn't stay -- eewww gross. Yep. I am SO HUNGRY :(
I am tired, and sleep eludes me. I am irritable.
I hurt, and nothing alleviates the pain. *D&^^&&
The "good days" are gone. My perspective is quickly funneling down with them. I am trying to keep up, but I am soooo tired.
Whine? me? Heck YEAH. especially today. I am tired of seeing the walls of my room.
I forgot the hot/cold/not/cold feelings every moment of the day, and I live in SOUTH FLOriDA.
So, tonight, woe is me. Tomorrow, I'll be better.
I leave with this: (and its not even a fair or nice question) but - who do ya'll prefer or have seen? Dr. Franocmano (sp?) or Dr. - see, I forgot to mention MEMORY LOSS!!!! LOLOL
Night, world. Chins up.
Joints- well, ya' got me there :)
~~~ ALI
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Friday, October 9, 2009
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Come on in... and please say "HELLO!"
Welcome to my EDS site.
Life is for living - even if it is modified, I firmly believe everyone has a story, a voice, and a chance to make the best of every day. Do I get angry? Yes. But, I really LOVE TO LAUGH. I believe perspective helps, so I choose to believe I CAN somehow, I WILL somehow, find a way to cooperate with EDS without getting shot down day to day....although I struggle! I AM human :)
I grew up hearing, "LIFE ISN"T FAIR," didn't like it then, still don't. Life is Not fair, neither is having a disorder I did not run to the local grocer to pick up on aisle 8!
Life is for living - even if it is modified, I firmly believe everyone has a story, a voice, and a chance to make the best of every day. Do I get angry? Yes. But, I really LOVE TO LAUGH. I believe perspective helps, so I choose to believe I CAN somehow, I WILL somehow, find a way to cooperate with EDS without getting shot down day to day....although I struggle! I AM human :)
I grew up hearing, "LIFE ISN"T FAIR," didn't like it then, still don't. Life is Not fair, neither is having a disorder I did not run to the local grocer to pick up on aisle 8!
PERSPECTIVE HELPS!
I choose to live my life as interestingly as possible. This page is purely part education,discussion, awareness, and hope. I have HOPE, because, I also have faith.
It's up to each of us how we enjoy the ride! A L I ~~~
I choose to live my life as interestingly as possible. This page is purely part education,discussion, awareness, and hope. I have HOPE, because, I also have faith.
It's up to each of us how we enjoy the ride! A L I ~~~
